Archive for the ‘Caregivers’ Category

Traveling Tips for Families with a Loved One with Alzheimer’s

Monday, September 9th, 2013

If you have a loved one with Alzheimer’s or other dementia, you may be apprehensive about bringing your family member with you when traveling. However, with a little bit of careful planning, you and your loved one can enjoy a safe trip.

Before deciding on travel details, consider what would be best for the safety and comfort of your loved one with Alzheimer’s. People in the early stages of the disease often enjoy travel, but for some the experience is overwhelming. Keep your family member’s preferences and limitations in mind when choosing your transportation method. The best journey is one that does not unduly disrupt your loved one’s daily routine. A person with dementia is likely to prefer a destination that is familiar or that involves visiting loved ones.

Navigating airport security can be difficult for someone with dementia; if you must travel by air, consider informing the airline of your needs ahead of time. Even if a wheelchair is not necessary, it may be a good idea for your family member’s comfort and because you will have an airline employee to help you get around the airport.

During the trip, be aware of the fact that a change in environment can be a trigger for wandering, and take precautions. Also be sure to keep essentials on hand such as a comfortable change of clothes, all prescribed medications, snacks and drinking water. You should also bring important documents such as copies of any living will or advanced health care directives, health insurance cards, and doctors’ names and contact information.

For more information about our elder law services, visit www.elderlawnewyork.com.

 

Study Finds High Disability Rates for Elderly

Tuesday, August 27th, 2013

Researchers at the University of California, San Francisco, have released a study recently published in JAMA Internal Medicine, after looking at more than 15 years of data. They examined the national Health and Retirement Study in order to discern how many elderly people are disabled in their last few years of life. The study looked at more than 8,000 adults over the age of 50 who died between the years 1995 and 2010, and how mobile they were, as well as any disabilities they had in their last years of life.

Gerontologists and other elder care professionals have been working on the “compression of morbidity:” keeping seniors healthy and active as long as possible so that there is little-to-no loss in quality of life until just before death. But despite their best efforts, the researchers believe that instead, people are living longer while also disabled. Though later-life disability can be slowed down, it cannot, it seems, be prevented entirely. According to the lead author, Dr. Alex Smith, most people who live to an older age, especially women, do so with a mobility issue or other disability for the last few years of life.

The study found that for the last two years before death, 28 percent of individuals were disabled in an area of “activities of daily living,” meaning they could not bathe, dress or toilet themselves without assistance. Twelve percent of that group was severely disabled; they needed assistance with all three of the activities of daily living, and other assistance, as well. The rate of disability rose sharply with the age ranges; of the group which died by age 69, only 15 percent were disabled in the two years prior to their deaths. Of the group which died after age 90, at least 50 percent were disabled within two years prior to their deaths.

Mobility issues occurred in most people in the study; 69 percent of the older group had reported that they could not walk more than several blocks, while 50 percent reported that they had trouble using stairs. Women overwhelming were more disabled in their later years compared to men the same age, possibly due to depression, osteoporosis and arthritis, all of which occur more commonly in elderly women than in elderly men. The study did not include the incidences of cognitive decline.

The study indicates that the U.S. needs better elder care facilities, comprehensive medical elder care and extensive support structures in place as the nation’s elderly population continues to grow.

How Nursing Facilities Can Be Welcoming to LGBT Residents

Monday, August 19th, 2013

Nursing homes have always had lesbian, gay, bisexual or transgender residents, but they have not always felt comfortable identifying as such, for fear of how staff or other residents might react. It is important for nursing facilities to be open and welcoming to LGBT residents, and to this end the Alzheimer’s Association has published a guide for long-term care facilities welcoming LGBT residents. The guide is also useful for LGBT elders and their families considering a nursing facility, to determine how welcoming it will be.

According to the Alzheimer’s Association, a facility should first of all assume that there are LGBT residents, and not assume that staff can identify them. LGBT residents cannot necessarily be identified by external characteristics and they may have past life experiences such as being in a heterosexual marriage or having children that do not fit common assumptions about LGBT people.

The association also recommends that nursing home staff ask residents about their sexual orientation in a safe and confidential way, in the same way that any other factual though potentially sensitive question would be asked. However, if the resident appears uncomfortable, the matter should not be pushed, and staff should remember that sexual orientation is just one aspect of a person’s identity.

The association recommends – and LGBT elders should look for – signs of welcoming in a long-term care facility. A facility can show that LGBT elders are welcome by prominently posting its non-discrimination policy, including same-sex couples in marketing materials, and including LGBT-inclusive images or messages in the lobby and other public areas. Forms should include relationship options such as “significant other” and “partner.” Staff should be trained on how to recognize and address the needs of LGBT residents.

When nursing facilities take these steps, it will be apparent to LGBT elders and their families that the facility is welcoming to them.

 

For more information about our elder law services, visit www.elderlawnewyork.com.

What to Do When an Older Loved One is Resistant to Care

Tuesday, August 13th, 2013

 

Caring for an older loved one can be a challenge, even more so if the family member is resistant to care. In dealing with this type of situation, it is important to understand the source of the resistance and how to encourage cooperation.

A family member who resists care, whether it is direct help by a loved one or professional care, is likely experiencing unhappiness due to loss of independence. Needing to be cared for involves a disruption of routine and loss of privacy, which can be disconcerting. An older family member may be feeling frightened of aging or feel guilty about being a burden on other family members. All of these factors can combine to cause a response that is understandable even if it is not very rational: resisting needed care.

An important part of dealing with resistance to care is knowing when and how to have the necessary conversations with your loved one. You should bring the subject up at a relaxed time when you will be able to take time to listen to each other. Be sure to ask questions about your family member’s needs and preferences. Even someone with Alzheimer’s or other dementia can express preferences. If your loved one is resistant to even talking about the care situation, try letting the matter rest for a while and bringing it up again later.

One effective strategy for encouraging cooperation is to suggest that a new type of care be introduced on a trial basis. Whether the change involves bringing in a home health aide or leaving home, much of the resistance may come simply from fear of the unknown. Once your loved one actually experiences the benefits of care, there may be less trouble accepting it. In the case of a home health aide, it can be useful to point out that this can help prolong independence.

Depending on the situation, it also may be helpful to have a professional such as a doctor, attorney or care professional explain the need for care and the benefits of a certain arrangement. Due to family dynamics, an older parent may be more likely to take the advice of a trusted adviser.

Resistance to care can be an enormous challenge. Communicating effectively with your family member can make all the difference.
For more information about our elder law services, visit www.elderlawnewyork.com.

How to Find a Senior Caregiver for an Adult with Alzheimer’s or Dementia

Monday, August 5th, 2013
Our guest blogger this week is Ken Myers, President of Morningside Nannies. – See more at: http://www.specialneedsnewyork.com/blog/#sthash.7I9XmaZ0.dpuf


Our guest blogger this week is Ken Myers, President of Morningside Nannies

As adults, we tend to take for granted an abundance of competency related normalcies that will one day begin to deteriorate, but there are many revelations that come with aging. One may wonder how our family members will find the proper person to take care of us when we are unable do so ourselves. How do our family members find the right person to take care of us when we are unable to do it for ourselves? The following is a list of considerations that need to be taken.

1. Experience – Though a person may have a substantiated educational background pertaining to the care of a senior with Alzheimer’s, someone with hands on experience may be better suited to provide for a person confronted with the ever-changing needs of their particular situation. You do not want to disregard education in total, but perhaps someone with more real time experience is better suited for the person that needs care.

2. Education – The positive value of a good education cannot be disregarded when considering a candidate.  A young person with a degree that is certified to care for seniors with disabilities may be adequate for your situation if it is not very complex. It will also provide that capable person with priceless hands on experience, enabling them to know what to expect going forward. At the very least the person will be prepared for the basic treatment of Alzheimer’s and/or Dementia and will likely be knowledgeable about CPR and First Aid. The latter is not guaranteed, so please ask.

3. Background Check – It is always smart to perform a background check on your caregiver and it should be a common practice. This will validate their credentials and prove useful in preventing an unfavorable situation when hiring live-in help. The downside to not preforming a background check is bottomless. This should always be done when considering care for a senior.

4. Trial Run – Impose a period of trial employment to gauge how well the candidate and the senior interact with each other day to day. Many adults will resist giving up control when it comes to personal care; it is natural to want to be independent. Grading how well a candidate performs under the pressures of resistance and aggression by the senior will help to determine if they are a fit for the job.

5. Caregiver Agency – There are many agencies that offer caregivers at varying levels of skill and education. These agencies have already prescreened, tested, and deployed these professionals to care for seniors in the past. Though these agencies tend to be more expensive, you can rest assured knowing that this candidate performs their job well and is proven.

It takes a great amount of patience and understanding to deal with someone with Alzheimer’s disease or Dementia. The person will need to be able to adapt at the drop of a hat and be able to care for us. You wouldn’t want to put someone who isn’t ready in that predicament, and many of us would rather not put our own family members through the frustration and anguish that comes with day-to-day care.

 

Author Bio:

Ken holds a master’s in business leadership from Upper Iowa University and multiple bachelor degrees from Grand View College.  As president of morningsidenannies.com, Ken’s focus is helping Houston-based parents find the right childcare provider for their family. When he isn’t working, he enjoys spending time with his three children and his wife.

 

For more information about legal services for seniors, visit www.elderlawnewyork.com.

Elderly Care: When An Aging Parent Needs Emergency Care

Tuesday, July 16th, 2013

The American College of Emergency Physicians (ACEP) has released tips for the adult children of elderly parents who find themselves facing a medical crisis. The emergency room can be a daunting experience. These tips may make the experience slightly less stressful.

When possible, the caregiver or accompanying adult should bring to the emergency room a completed Medical History Form. The form should list any allergies, the medications the elderly person is taking, and both past and current medical conditions. This form should be given to the intake attendant.

In addition to the Medical History Form, have on hand a list of the medical health professionals the elderly patient sees, such as cardiologist, oncologist, etc. Have their names and contact information written down, as well as the reasons for their care and how long the elder has been under their care. Also include any information about recent surgeries, such as pace makers or hip replacements, and include complete insurance and identifying information.

The emergency physicians also suggest that any caregiver or attending adult bring a change of clothing and personal items, and should expect that the elderly individual will be admitted for overnight or extended care. While this may not happen, arriving prepared will save time and effort later. The items can always be left in the car “just in case.” Also, caregivers may wish to bring reading material to pass the time while the patient is waiting to be seen or for test results. Elderly patients make take longer than expected to have a complete workup, especially if they have multiple issues or complaints which must be investigated.

The ACEP also suggests that the caregiver clarify to the attending physician if the patient’s state of mind is altered or if he or she is confused. If the caregiver is given information and instructions, he or she should share that information with the patient; work to keep them informed and allow them to make their own medical care choices.

Many elderly patients downplay their symptoms when in the ER, doctors report. Be prepared and willing to clarify with additional information, if needed.

And long before that trip to the ER is a possibility, they say, consider discussing with the elderly parent about the possibility of their drafting a living will. When in the midst of tough decision-making such as when the condition is a life-threatening one, it can make a significant difference in how family members approach some choices that must be made.

 

For more information, visit www.elderlawnewyork.com.

 

Phrasing Affects Do Not Resuscitate Choices

Wednesday, July 10th, 2013

 

Researchers at the University of Pittsburgh recently studied what factors affect the decisions of people who are designated health care surrogates for a loved one. The researchers showed 252 people a video simulation of an actor posing as a doctor appraising them of a certain health condition and asking whether the patient should be resuscitated. They found that the way information is phrased makes a significant difference in what the health care surrogate chooses.

The study, developed in part by Dr. Amber Barnato and published in Critical Care Medicine, found that two factors made the biggest difference in the decision. One factor was whatever the health care surrogate believed other people in the same situation had chosen. When people were told that most people want CPR to be performed if the patient’s heart stopped in a certain situation, 64 percent also wanted CPR to be tried. If they were told that most people do not choose for CPR to be performed, then only 48 percent chose CPR.

The other significant factor was whether the “doctor” in the video used the phrase “allow a natural death” rather than the phrase “do not resuscitate.” When the latter phrase was used, 61 percent chose for CPR to be performed, but that figure dropped to 49 percent when the phrase “allow a natural death” was used.

Other factors had little effect. Expressions of sympathy from the “doctor,” being shown a photo of the loved one, or being asked to think about the choice from the perspective of the loved one all made little or no difference in the choice.

 

How to Become a Caregiver Coach in Westchester County

Friday, June 28th, 2013

Westchester County has introduced a new initiative to train volunteers to become caregiver coaches. This is a unique way to volunteer your time to help local families and contribute to an innovative community project.

Few people are prepared to become caregivers to a disabled or elderly loved one, and people who are thrust into the role of caregiver often feel overwhelmed. A caregiver coach is someone who is trained by professionals to give individual support to family caregivers. This support can be essential to helping caregivers understand their responsibilities and make informed decisions.

The Livable Communities Caregiver Coaching (L3C) Program is an initiative of Westchester County’s Department of Senior Programs and Services. The program aims to form a corps of volunteers who have been trained in caregiver coaching skills and can provide services to family caregivers. The initiative is part of an overall goal of supporting seniors in living with dignity and independence in their own homes.

Westchester’s caregiver coaching program is the most comprehensive in the nation, which is appropriate for the county with the fastest-growing population of seniors in the country. Today one in five Westchester residents is age 60 or older, and the majority of these seniors have a disability of some kind. It is estimated by the Westchester planning department that by 2030, people over the age of 60 will represent 25 percent of the county’s population.

Anyone may volunteer to be a caregiver coach. Experience as a caregiver is helpful but not necessary. The ideal caregiver coach is an empathetic, nonjudgmental person who wishes to help others. Volunteers will receive approximately 12 hours of training spread over three weekly sessions. A one-year commitment is required. Coaches will also participate in a monthly conversation where challenges and information will be shared about caregiver coaching experiences. Coaches will learn about the aging process and the responsibilities that caregivers face, as well as how to convey factual information clearly. As caregiver coaches, volunteers will share information and listen to caregivers’ concerns, while refraining from offering legal or medical advice.

If you are interested in volunteering to become a caregiver coach, contact the Department of Senior Programs and Services at 914-813-6441 or visit their website: http://seniorcitizens.westchestergov.com/caregiver-coaching/